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AL
AMYLOIDOSIS
AMYLOIDOSIS
Read more about this rare disease
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Featured Patient Story
Carolyn Foulston
Carolyn Foulston’s Video Message to Physicians
The Cardiac Amyloidosis Program at Brigham and Women’s Hospital’s (BWH) research patient, seen by Sharmila Dorbala, MD, FASNC, with AL amyloidosis and cardiac involvement discusses diagnosis and treatment.
View video here
read moreLatest News Story Headlines
Intellia Therapeutics Announces First Patient Dosed in the HAELO Phase 3 Study of NTLA-2002, an Investigational In Vivo CRISPR Gene Editing Treatment for Hereditary Angioedema
January 22, 2025
Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy
Nov 25, 2024
− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −
Attruby™ (acoramidis), a Near Complete TTR Stabilizer (≥90%), approved by FDA to Reduce Cardiovascular Death and Cardiovascular-related Hospitalization in ATTR-CM Patients
11.22.2024 at 7:12 PM EST
Calendar & Upcoming Events
Webinar: Mind Over Matter - Empower Your Healing Journey
Webinar Session, Wednesday, Jan. 22nd, 2025 at 6 PM (ET) Zoom Meeting
Webinar: Living Fully with Amyloidosis: A Roadmap to Fulfillment
Webinar Session, Wednesday, Jan. 29th, 2025 at 6 PM (ET) Zoom Meeting
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium, Large, & XL sizes are SOLD OUT. ***
Available sizes : S, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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